Showing posts with label Stupid Cancer. Show all posts
Showing posts with label Stupid Cancer. Show all posts

Friday, October 4, 2019

Advice for Young Doctors Treating Women of a Certain Age or Listen Up, Doogie, I'm Talking to You

Advice for Young Doctors Treating Women of a Certain Age
or Listen Up, Doogie, I'm Talking to You
by Sarah Gowan
who is almost 60 and just as Cranky as she was before the Side Effects


1. The Introduction: Do not attempt to engage or flatter by calling us, "Kiddo", "Young Lady", "Little Miss", or any other cutesy epithet. Our years of being charmed by precious nicknames are long past. Do it and I will call you "Doogie" till I die.


2. Listen: Tell me, why do these earnest young things think they have the answers? THEY DON'T EVEN KNOW THE QUESTIONS!!  You may have spent a decade in med school/residency, but when it comes to my body YOU KNOW NOTHING. Your medical degree earned you the privilege of listening to your patients, so use it! I've spent decades figuring out what works for me and what really doesn't. I've even figured out some things before the doctors did and will know the answer before you do. You will save us a lot of time if you listen. When we say Something Is Not Right, we are usually right.


example: My Mom went into her very experienced doctor and said, "Something Is Not Right. I have a blood clot in my leg." He could have brushed her off, but instead said, "You know your body better than I do, so I believe something could be wrong. Let's run some tests." Three positive tests later they discovered she did indeed have a blood clot in her leg that could have killed her if left untreated. He is never allowed to retire, as far as I'm concerned.


3. Speaking of which: Women of a Certain Age do not complain about pain unless there is pain and probably a lot of it. We know pain - we were born into it. We suffered menstruation, perms, childbirth, bad-fitting bras, child-rearing, pantyhose, surgeries, high heels, diets, assaults, and menopause, plus all the same crap men had to survive, too. (Except the testicle things, but childbirth is definitely worse, so I don't think that counts.) Listen to us when we tell you there is pain - we aren't making it up.


And guess what, pain isn't always consistent, so we can't tell you where it's going to strike next. Ankles today, that one spot next to the shoulder blade tomorrow, just the inside of the knees the day after, and then horrible leg cramps (not just a Charley Horse - the whole flippin' leg!) that night. My Pain rambles around my body like a sleepwalking night terror, randomly lashing out at invisible monsters. God I miss paregoric. It was the cure-all for everything in our day.


4. Oh and the sleep thing? Bwa-ha-ha-ha-ha! None of us have had a full night's sleep since we turned 21. 


5. We are not fat - we are Traditionally Sized: Be very, very careful how you bring up weight, if you even need to mention it at all. Women of a Certain Age are keenly aware of their weight. We've watched it zoom up and down, up and down, up and down - and not in the good way - our whole lives. We could probably tell you what it is to the ounce when we're standing stark naked on the scale (always before breakfast, after the morning poo, but before the shower) and how it will have increased exactly 7.5 pounds by the time we get to your office. We don't need you you tell us to lose/gain weight. 


And if we've been judged by our BMI by others, we've judged ourselves even more harshly. Every one of us has tried diets, (excuse me, "nutrition plans") and know they don't work unless we become insanely obsessed with every damn morsel we eat. So when you ask me about my diet and I say, "Listen up Doogie - I've been cooking amazing, healthy, nutritious meals for myself and my family since before you were too much Jameson's on Christmas Eve. Do NOT lecture me on nutrition, if you don't want that stethoscope wrapped around your pimply neck." 


These youngsters, who can lose 6 pounds by skipping breakfast and playing a game of racquetball, have no clue how hard it is for a woman who went through surgical menopause to lose even a few pounds. Remember, WE HAVE NO HORMONES, not even a trickle. We're hungry all the time -  I mean ALL the time. Ever seen teenagers eat after a swim meet? Yeah, we're that hungry. So if we're a little cranky when you suggest we steam our veggies instead of sautéing them in a microscopic dab of olive oil, count yourself lucky that we haven't dope-slapped you with a half-slab of ribs and a side of steamed broccoli.


6. Stress: Stop. Just stop. Stop asking if we have we have stress in our lives - jesum crow, dude, any thinking person with a scrap of common sense has gnawed their fingernails to nothing and taken to spiking their wine slushies with extra vodka. The world is going to hell in a handbasket and we're all flipping out - and that's still just the baseline. Women of a Certain Age are managing this and more without any hormones. Really all you need to know is that under no circumstances should you to mention meditation or yoga and we'll get along just fine.



Monday, March 25, 2013

About My Lady Business: Picture Day

I go in for my 3 month Lady Cancer check-up and darling doctor J sees that I'm due for a mammogram. He says he also wants to do a manual breast exam. Fine. Whatever. I've been getting these since I was a teenager and it's no big deal. Thankfully there was also a female nurse and a female resident in the room when this slightly surreal conversation happened:      I'm laying there with one hand flung over my head wondering if my deodorant was holding up or (worse) if it was forming unsightly little pit pills, when he says,

Doc: "You know," [push poke push], "they are no longer recommending manual breast exams. Just mammograms." [mush poke] 

Me: "Really?

Doc: "Not even self exams. Other side"

Me: "Then why are you still doing them?"

Doc: [sigh/headdrop] "I don't know." [poke push]

Me: "And yet you're still touching my boob..."

Where I parked
So today I go for my mammogram at my local hospital. After dealing with two hospitals in the last year, I tend to forget things like where I parked so I've learned to take a picture of my parking level.  Today was M3.

The place I go is very nice with real cloth gowns, nice dressing rooms with forgiving lighting and even a cappuccino machine.




Stylin' in the cloth gown!


Disney Princess dressing rooms!


Caffeine!













I think grown-up should get merit badges too.
Today was my 10th mammogram!









Friday, June 8, 2012

Lady Business 1 - Stupid Cancer 0

I had a follow-up today with Dr. J who poked around, peered and prodded and said I'm healing up nicely. The pathology reports were in and they confirmed that the cancer was confined to the cervical canal, and was .5 cm x 1.3 cm. No cancer was found in the uterus, ovaries, tubes, surrounding tissue or in any of the 27 lymph nodes he removed. (No wonder I felt like I had been kicked in the gut by a horse.) He'll take my results to a pathology review at the end of the month to run the diagnosis by other doctors to see what they think, but he's pretty damn confident I won't need any further treatment. Yippee! I'll need follow-up visits with him every three months for two years and, if all stays clear, I'll drop back to every six months. I'm back at work, sit-down computer stuff only, and no dancing or heavy lifting for a couple more weeks, but then I should be good to go!

Here are some things people have wanted to know:

As if...
Do you feel like something is missing? 
No, in fact there is a lot of swelling after a surgery like this, so there's a bit of pressure, bloating and tenderness. Kind of like the worst PMS ever. With cool scars.

What happens to the place where the uterus was? 
I'm assuming the other abdominal stuff sort of slurps on over like jello on a warm day. The uterus isn't all that big, so it's not like there is a big space in there to be filled up.

Do you have stitches?
There are internal stitches that will dissolve. Externally I was super-glued closed. I love that. I feel like a big walking craft project.

How's the whole bladder thing going?
This is the hardest thing to deal with. He spent 4-1/2 hours rummaging around in my abdomen, so predictably there is some nerve trauma. Once the Creepy Catheter was out, I had to learn to pee again. You know how newborn babies cry and you have no way of knowing if they're hungry or tired or wet or in pain? Well none of the nerve signals from my nether parts were what I was used to feeling - my Lady Business would start howling and I had to figure out what the heck it wanted me to do. Let's just say each trip to the john was a new adventure. Hey, at least I'm not incontinent.

What does it feel like?
I won't lie, it frickin' hurts and certain things hurt more than others. Driving sucks, walking is hard, but playing guitar is fine. Painkillers are the best invention ever, right after super robotic surgery. I get tired at unexpected moments, but less so every day. I have some hypersensitivity which means stretch pants and granny panties for a while, but to be honest that's how I dress most of the time anyway. As the nerves sort themselves out and come back to life, I experience new and different pains. Good because I was spared having to feel all the pains at once, not so good because I'm really ready to stop taking painkillers.

How does it feel to be a Cancer Survivor?
In a celebratory moment I sent a message to friends that read: "I didn't just survive cancer - I took it out back and kicked its malignant ass." I was Indiana Jones shooting the guy with the whip - my treatment was quick, aggressive and, most likely, very successful.

In the past couple of weeks I've been thinking a lot about my identity as a cancer survivor and realized that I don't feel all that comfortable wearing that label. The main reason is that there are people, including several close friends, who have my undiluted admiration and respect for the horrific treatments they were willing to endure in order to beat cancer, including repeated rounds of chemo, radiation and surgeries. Some survived, some didn't, but they all fought like hell and I'm in awe of their strength and courage. Compared to what they went through, my treatment was a minor inconvenience. I am undeniably privileged to have access to the best health care, full insurance coverage, flexible work hours with sick pay and an absolutely astounding community to support me. I didn't survive so much as lay back and let people feed me soup and chocolates for a couple of weeks. Assuming the badge of Cancer Survivor feels a little like wearing a T-shirt proclaiming "I Survived the Tea-cup Ride at Disneyland" or getting a Purple Heart for a paper cut.

Technically, yes, I survived cancer, but I'm not sure I want to shape my identity around not dying of a disease. There are so many other parts of my life that are way more important to me - family, friends, music, dance, art....Cancer Survivor is just way far down on the list.  I also discovered that it galled me to think of it as "My Cancer". That little f**ker invaded my Happy Place and I couldn't get rid of it fast enough; the last thing I want to do is sound attached to it. My mom suggested that if I'm ever tempted to discuss cancer with possessive language, that I consider using the phrase "My Beloved Cancer" instead. Thanks, Mom, as always, you know just the right thing to say.

Also I don't look good in pink.



Wednesday, May 30, 2012

Part 6: The Catheter and the Hat

OK, just one more post about Creepy Catheter and then I won't bring it up again.

Yesterday I had a post-op appointment with Dr. N because my surgeon Dr. J is out of town this week. The receptionist scheduled it for the hospital closest to my house, but I'm not sure she was really clear on what I was supposed to have done.

The waiting room at this particular Cancer Center was ginormous and science fiction surreal, except for the obligatory TV blaring in the corner and the unsettling Cancer Magazines scattered across the tables. I give the receptionist my name and she says "I don't work for Them, but I'll let Them know you're here." Mom and I sit down to wait. And wait. Aaaaannnnnd wait. Every 10 minutes or so someone would come out of the back wander around the waiting room, watch the TV for a while, ask if I was SallyAnne and then wander out again. Eventually the doctor comes out and starts heading for the exit. I say to Mom, "He doesn't look too tough, if you create a distraction I think I can take him down before he reaches the door." Considering the catheter and incisions, we thought better of it and he returned a couple of minutes later.

I was called back to the examining room and the nurse took my vitals and described the process of removing Creepy Catheter and left me to change. Dr N. turned out to be absolutely delightful. He went over what he was going to do in plain language and used just enough humor to put me at ease without feeling forced. Also I'm a sucker for an accent and the streak of New York City coloring his commentary just killed me.

A Foley Catheter is an ingenious device. A thin tube is inserted through the urethra and into the bladder. After it's inserted a little balloon on the end in the bladder is inflated with water, holding it in place. The other end goes to the urine catching bag. When it's time to remove it, they deflate the balloon via a special valve and pull the tube out. Here's the thing, though, they needed to know that after they removed the tube, my bladder was functioning and I could fully empty it when I peed, otherwise they were going to have to reinsert the tube. This was completely unacceptable to me, particularly because I was unconscious when it was originally inserted.

The only way to be sure was to fill my bladder to almost bursting with a measured amount of water via the tube, take out the blasted thing and then have me pee into a urine catching "hat" to measure the amount coming out. Dr. N starts squirting water in and he says "You should start feeling like you have to pee." A little more, and "If you were watching TV you might consider peeing at the next commercial." Still more and "Forget the commercial, you have to go now." "OK now you're starting to curse me out in your head." A total of 200cc and he deflates the balloon, pulls out Creepy Catheter and sends me off to the bathroom, which is down the hall, around the corner and down another hall.

As I sit up, the water is threatening to squirt out and I say, "Gimme a paper towel" slap the sucker between my legs and go dashing down the hallway in my TSA socks, robe flapping in the breeze practically knocking over radiation patients in desperation. On the way the nurse says, "Gee I hope nobody is in there." Yeah, you think!?

The bathroom was open and she put the pee hat in the john and left me to it. I was determined that unholy piece of aquarium tubing was not going back in. Sure enough I must have pulled excess water from my kidneys and even my swollen feet because 200cc went in and 250cc came out. "Pee on Demand" now gets added to my list of superpowers.

One last bit of fun with the pee bag before I got rid of it. I wore mine strapped around my shin the same way we wear Morris bells and so thought it would be entertaining to give it a May Day Makeover.


Wednesday, May 23, 2012

Part 5: It's All Fun and Games Until Sombody Loses a Uterus (1)

It was a four-hour surgery where Dr J removed uterus, ovaries and lymph nodes in the groin and near the aorta. I'll get pathology results in a week or two, but he said he didn't see anything alarming. Of course, that's what they said about my cervix too, so hopefully I don't have some kind of mutant stealth cancer. Anyway I was in at 6:30 am and out at 8:30pm the same day. Yes folks, radical hysterectomy is now an outpatient procedure. Not even any stitches or bandages - they super-glued me closed and sent me on my way.

This is me about an hour after I woke up

Even with cool robotic surgery and delicious narcotics afterwards, hysterectomies hurt. The incisions are much higher than I expected, but I'll spare you the gruesome photos.  I have bruises in some unexpected places and I try not to think about what position they had me in while I was out.


Catheters are extremely annoying and I'm every bit as creeped out by it as I'd thought I be.







Catheters are creepy

 Also I haven't had cotton-mouth like this since that experimental period in the 1970's.
Ice chips please

I did get some lovely hospital jewelry.

That's my ID band (with a barcode!) and two allergy alerts.

Fancy leg warmers/massagers and booties

Stylin'

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